Helpful Links
For information on Epilepsy & SUDEP pertaining to tools, devices, service dogs and more are all provided below. We believe these resources and organizations provide beneficial information to patients and caregivers.
Domesti-Pups
We provide therapy dogs, service dogs for persons with disabilities, and trained rescue dogs. Our mission is to improve the quality of life for persons with special needs through the assistance of animals, and to promote awareness through education.
SIT Service Dogs
https://www.sitservicedogs.com
Supporting Independence through Teamwork Providing Mobility Assistance Dogs and Medical Alert Dogs.
Domino Service Dogs
The mission of Domino Service Dogs (DSD) to assist people with disabilities to train their own service dog, using reward-based training techniques. Domino Service Dogs serves persons with disabilities, who reside in Colorado. DSD provides a 2-year program for people who are training their own service dog.
Sherlock Dog Training
www.facebook.com/sherlockdogtraining
Sherlock Dog Training Specializes in training Seizure response dogs, and providing in home training solutions for families and their pets.
Little Angels Service Dogs
Little Angels Service Dogs reaches across all of the United States partnering service dogs with the disabled. Dedicated to providing the highest quality dogs to assist in the daily lives of our recipients.
New Hope Assistance Dogs, Inc.
Located in Warren, Pennsylvania, they provide custom-trained Assistance Dogs for both children and adults as well as host events.
4 Paws for Ability
4 Paws for Ability enriches the lives of children with disabilities by training and placing quality, task-trained service dogs. This provides increased independence for the children, and assistance to their families.
Emfit
The Emfit MM™, Movement Monitor is designed to detect faster, abnormal movements (ie muscle jerking) that may occur during the night, and will sound a high-frequency alert if these movements continue past a preset amount of time.
The Emfit MM, Movement Monitor consists of a film-like bed sensor and a control unit. The dynamic sensor pad is placed under the mattress and detects even the slightest movements of the person lying above it, including micro-movements caused by the heart beating. The sensor is attached to the control unit with an interconnection cable. When faster, sustained movements continue longer than pre-set threshold, a notification is triggered. System can also notice light movements, thus making it equally suitable for small children.
The Emfit MM, Movement Monitor is clinically proven technology that’s easy to install. Sophisticated embedded software and patented sensor technology effectively prevent false alarms that can lead to user fatigue. The Emfit MM has an audible alarm with adjustable volume for short-distance notifications. It can also interface with most nurse call systems, wireless transmitters and personal emergency phones with the included dry-contact output. An optional Remote Alarm (range up to 900 feet from base unit) and Medical Grade AC Adapter are also available.
SAMiAlert
SAMiAlert® is a sleep activity monitor for caregivers and individuals who need to watch carefully for unusual movements at night. During sleep, audio-video information from a remote infrared video camera is sent to an app that runs on an iPod Touch. The SAMi app records and analyzes the video for unusual activity.
When an unusual event is detected, it sounds an alarm and records live audio and video from the SAMi network camera. Within seconds, the individual or caregiver can take any necessary action.
SAMi was created to address a very personal need for a reliable system that:
·Alerts you to your child’s abnormal movements with a loud alarm.
·Does not sound alarms for a child’s normal tossing and turning during sleep.
·Provides you with a quick way to see and hear what is happening. This allows you to go back to sleep if everything is OK.
·Makes recordings that you can share with your doctors
SmartWatch Inspyre
When the SmartWatch Inspyre™ by Smart Monitor detects repetitive shaking motion, it signals the user’s device (iPhone or Android phone) to send text and phone call alerts to whomever the SmartWatch Inspyre™ user designates, such as multiple family members and care providers, including the GPS physical location of your loved one. The Inspyre is compatible with Samsung Gear and Galaxy watches and all versions of Apple Watch.
Within seconds, family members receive these alerts which include the date, time, location, and duration of the event. SmartWatch Inspyre™ users can also summon help with the push of a button. Alerts can be sent to any phone, anywhere, and detailed reports of each event can be securely accessed for later review with physicians.
We reserve this monitor for only those over the age of 12 unless you are providing your own compatible watch.
Neureka
For those who have seizures with or without movement, take a look at this new monitoring device. Feedback has been wonderful from those we’ve provided Neureka monitoring devices to. This monitor measures and alerts for changes in heart rate, heart rate variability, movement, and oxygen levels.
Neureka empowers you on a safer, faster journey to seizure freedom. Find peace of mind with caregiver alerts, easy medication management, and at-home sleep monitoring for SUDEP risk.
Seamlessly share comprehensive health reports with your loved ones and care team with all your sleep data, seizures, medications, side effects, and more. Personalized insights help you and your care team make better treatment decisions together. Neureka also offers the option for you to anonymously contribute your data to a global research community to uncover the causes of SUDEP, and accelerate the development of new interventions to prevent this devastating consequence of epilepsy.
Paragon by Aterio
Paragon™ is the latest health and fitness software that can assist in monitoring heart rate and breathing during exercise and other activities to alert to health conditions which cause a sudden change in heart rate. The system is designed to work with many fitness sensors.
The Paragon™ software system consists of two components: a lightweight watch type sensor that communicates via Bluetooth with the Paragon™ Software installed onto your own approved tablet
The lightweight heart monitoring sensor can be comfortably worn on either the wrist or ankle (for small babies the upper leg) and does not interfere with the user’s sleep.
The sensor constantly monitors the wearer’s heart rate and sends data to the tablet running the Paragon™ Software (which must be in the same room, approximately 1 to 2 meters adjacent to the sensor).
The sensor works by using infrared light technology that detects the blood flow under the skin and transmits this wirelessly via Bluetooth to the tablet, where it is converted by the Paragon™ software to continuously display the wearers heart rate.
Please be aware, if the sensor is removed whilst actively monitoring a person it may not indicate removal and will provide false heart rate information.
The tablet processes this constant flow of data and will raise an alert if the wearer’s heart rate falls outside the normal parameters, which are individually programmed and tailored to each wearer’s unique heart rate.
Empatica
The Embrace2 product made by Empatica is a wristwatch worn device that is designed to detect and alert for tonic-clonic (convulsive) seizures after 20 seconds, and to monitor physical activity and rest. The Embrace2 transmits data to a paired smartphone via a Bluetooth connection, and has the ability to alert others via a text message and phone call when a possible convulsive seizure occurs. The Embrace2 system requires the person wearing the watch to have a compatible smartphone, which they must keep within approximately 25 feet. If you are applying for funding for a child user, please note that the child must have their own compatible smartphone or tablet with them at all times, and the caregiver must have their own phone to receive the alert. A valid prescription signed by your neurologist is required. Please be aware that you will be charged a monthly subscription fee of $9.99, $19.99 or $44.99, depending on the plan you select. See their website for details.
Miku Monitor
Miku Pro Tracks breathing, sleep patterns and nursery conditions, contact-free.
Neebo Monitor
Continuous monitoring solution for children 0-5. Heart rate, oxygen levels, thermal state, activity and audio monitors in a single device.
Boulder Center for Neuro Health
Individualized support and complementary treatment modalities focusing on the bio-behavioral aspects underlying epilepsy and FND. PNES
Sleep Save Anti-Suffocation Pillow
Save pillows for those with disabilities. Receive 15% off with CHF, use the link above.
VNS Therapy
Proven seizure control for people living with hard-to-treat seizures. Backed by 20 years of data, VNS Therapy can safely lead to fewer and shorter seizures and better recovery.
NeuroPace Responsive Neural Stimulation System
The RNS® System is an award-winning technology developed and manufactured in Silicon Valley that has been recognized for its innovation. Similar to a pacemaker that monitors and responds to heart rhythms, the RNS System is the world’s first and only medical device that can monitor and respond to brain activity.
SeizAlarm is a user-friendly seizure detection app which allows those with epilepsy and other seizure disorders to alert emergency contacts automatically when seizure-like motion or a concern heart rate is detected.
Captureproof
www.Captureproof.com
A picture is work a thousand words, a video is worth a million. Record your health trends through photos and videos, instantly and securely share them with your doctor to get the best care. CaptureProof empowers you to show-and-tell your health.
Weighted Blankets by Ben’s Blankets
A nonprofit that shares at-cost and free weighted blankets with children who have disabilities.
Treasured Bears
MGAHomeCare
PASCO
Solace Pediatric Healthcare
WellPower Therapy Direct