Helpful Links
For information on Epilepsy & SUDEP pertaining to tools, devices, service dogs and more are all provided below. We believe these resources and organizations provide beneficial information to patients and caregivers.
Domesti-Pups
Domino Service Dogs
The mission of Domino Service Dogs (DSD) to assist people with disabilities to train their own service dog, using reward-based training techniques. Domino Service Dogs serves persons with disabilities, who reside in Colorado. DSD provides a 2-year program for people who are training their own service dog.
Guild Assistance Dogs
Little Angels Service Dogs
New Hope Assistance Dogs, Inc.
Located in Warren, Pennsylvania, they provide custom-trained Assistance Dogs for both children and adults as well as host events.
4 Paws for Ability
The Emfit MM™, Movement Monitor is designed to detect faster, abnormal movements (ie muscle jerking) that may occur during the night, and will sound a high-frequency alert if these movements continue past a preset amount of time.
The Emfit MM, Movement Monitor consists of a film-like bed sensor and a control unit. The dynamic sensor pad is placed under the mattress and detects even the slightest movements of the person lying above it, including micro-movements caused by the heart beating. The sensor is attached to the control unit with an interconnection cable. When faster, sustained movements continue longer than pre-set threshold, a notification is triggered. System can also notice light movements, thus making it equally suitable for small children.
The Emfit MM, Movement Monitor is clinically proven technology that’s easy to install. Sophisticated embedded software and patented sensor technology effectively prevent false alarms that can lead to user fatigue. The Emfit MM has an audible alarm with adjustable volume for short-distance notifications. It can also interface with most nurse call systems, wireless transmitters and personal emergency phones with the included dry-contact output. An optional Remote Alarm (range up to 900 feet from base unit) and Medical Grade AC Adapter are also available.
SAMiAlert
SAMiAlert® is a sleep activity monitor for caregivers and individuals who need to watch carefully for unusual movements at night. During sleep, audio-video information from a remote infrared video camera is sent to an app that runs on an iPod Touch. The SAMi app records and analyzes the video for unusual activity.
When an unusual event is detected, it sounds an alarm and records live audio and video from the SAMi network camera. Within seconds, the individual or caregiver can take any necessary action.
SAMi was created to address a very personal need for a reliable system that:
·Alerts you to your child’s abnormal movements with a loud alarm.
·Does not sound alarms for a child’s normal tossing and turning during sleep.
·Provides you with a quick way to see and hear what is happening. This allows you to go back to sleep if everything is OK.
·Makes recordings that you can share with your doctors
SmartWatch Inspyre
When the SmartWatch Inspyre™ by Smart Monitor detects repetitive shaking motion, it signals the user’s device (iPhone or Android phone) to send text and phone call alerts to whomever the SmartWatch Inspyre™ user designates, such as multiple family members and care providers, including the GPS physical location of your loved one. The Inspyre is compatible with Samsung Gear and Galaxy watches and all versions of Apple Watch.
Within seconds, family members receive these alerts which include the date, time, location, and duration of the event. SmartWatch Inspyre™ users can also summon help with the push of a button. Alerts can be sent to any phone, anywhere, and detailed reports of each event can be securely accessed for later review with physicians.
We reserve this monitor for only those over the age of 12 unless you are providing your own compatible watch.
PulseGuard
PulseGuard Mark II is monitoring system designed to detect and alert to any seizures that are associated with a rise or fall in the heart rate, as well as sudden medical emergencies that cause a sudden fall to the heart rate. The system consists of three components – A wrist or ankle worn sensor, a Dedicated PulseGuard tablet pre-loaded with the specialist PulseGuard software and a failsafe paging system. The sensor has a soft adjustable elasticated strap, suitable for babies right up to adults, is fully waterproof and has a battery life of 24 hours with a 2 hours charging time. The PulseGuard tablet needs to be within 10 meters of the sensor at all times when in use as it communicates with the sensor via Bluetooth technology.
The parent’s paging system has a range of up to 450 meters and allows the parent or caregiver to be alerted as soon as the users heart rate rises or falls outside the unique heart parameters set. It will also alert should the sensor become disconnected, the system suffers any software issues that cause the program to unexpectedly stop, or the pager loses connection to the system at any time, making it a failsafe system. PulseGuard is not a medical device. It is designed as a monitor for personal use.
SeizureLink
The SeizureLink algorithm is muscle activated, not motion activated. It recognizes an electrical muscle signal. Since we recognize this signal on the surface of your skin, it is more properly known as surface electromyography, or sEMG. Because it is recognizing sustained tonic muscle signals, the SeizureLink algorithm can sense when the muscle clenches and tightens. And it does it fast — on an average of 9 seconds versus waiting for the body to shake. The Monitor alarms and sends out a real-time alert to the app on a mobile device. This alert goes out to your selected caregivers so that you can get help as soon as possible. The event gets logged into a seizure diary on your phone so that you can add details to it later and share with your caregivers. Electrodes must be purchased on an ongoing basis for the SeizureLink system to operate.
Empatica
The Embrace2 product made by Empatica is a wristwatch worn device that is designed to detect and alert for tonic-clonic (convulsive) seizures after 20 seconds, and to monitor physical activity and rest. The Embrace2 transmits data to a paired smartphone via a Bluetooth connection, and has the ability to alert others via a text message and phone call when a possible convulsive seizure occurs. The Embrace2 system requires the person wearing the watch to have a compatible smartphone, which they must keep within approximately 25 feet. If you are applying for funding for a child user, please note that the child must have their own compatible smartphone or tablet with them at all times, and the caregiver must have their own phone to receive the alert. A valid prescription signed by your neurologist is required. Please be aware that you will be charged a monthly subscription fee of $9.99, $19.99 or $44.99, depending on the plan you select. See their website for details.
Rocky Mountain Center for Epilepsy
Individualized support and complementary treatment modalities focusing on the bio-behavioral aspects underlying epilepsy and FND. PNES
Sleep Save Anti-Suffocation Pillow
VNS Therapy
Proven seizure control for people living with hard-to-treat seizures. Backed by 20 years of data, VNS Therapy can safely lead to fewer and shorter seizures and better recovery.
NeuroPace Responsive Neural Stimulation System
Weighted Blankets by Ben’s Blankets
A nonprofit that shares at-cost and free weighted blankets with children who have disabilities.
Treasured Bears