Movement Monitors

Finding the Right Monitor for Your Family

If someone in your family has epilepsy—especially nocturnal seizures—a movement monitor can be one of the most important safety tools you have. We know that navigating the options, the costs, and the questions can feel overwhelming on top of everything else you’re already managing.

The Chelsea Hutchison Foundation is here to help you understand what’s available, what to look for, and how to access financial assistance if cost is a barrier. You don’t have to figure this out alone.

What is a Movement Monitor?

A movement monitor is a device that detects the rhythmic movements associated with a tonic-clonic seizure during sleep. When it detects a seizure, it alerts a caregiver so they can respond quickly.

Monitors don’t prevent seizures. But they give families a window to respond—and in situations involving SUDEP risk, that window can be everything.

What to Look For

Not all monitors are the same. Here are the key factors to consider when evaluating options:

Monitor Options to Explore

There are several monitors commonly used by families in the epilepsy community. We can walk you through the landscape during a conversation, but here are some categories to be aware of:

  • Under-mattress movement sensors—detect movement through the mattress surface; no wearable component required
  • Audio/video monitors with seizure detection—camera-based systems that use AI or movement algorithms to detect seizure patterns
  • Wearable seizure detection devices—worn on the wrist or elsewhere; may track movement, heart rate, or both
  • Medical-grade multi-parameter monitors—typically prescribed and may be covered (partially or fully) by insurance

Cost and Insurance

Monitor costs vary from about $400-1200, rarely covered by insurance.

Before purchasing out of pocket, it’s worth asking your neurologist to write a letter of medical necessity. This can open the door to insurance coverage or reimbursement that families often don’t know to pursue.

Tips for Navigating Insurance

  • Ask your neurologist to document seizure frequency, type, and SUDEP risk factors in your file
  • Request a letter of medical necessity specifically for a nighttime seizure monitor
  • Contact your insurance provider and ask whether seizure monitors are covered under durable medical equipment (DME) benefits
  • If denied, ask about the appeals process—many initial denials are successfully overturned
  • Check whether your state’s Medicaid program covers seizure monitoring equipment

Financial Assistance

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If cost remains a barrier after exploring insurance options, the Chelsea Hutchison Foundation may be able to help. We work with families on a case-by-case basis to provide financial assistance toward the cost of a monitor.

This isn’t an online application process. It starts with a conversation—because every family’s situation is different, and we want to understand yours before we talk about next steps.

“We know that a monitor shouldn’t be out of reach for any family that needs one. If you’re hitting a wall, contact us. That’s exactly what we’re here for.”

To start the conversation, reach out by email. We’ll listen, ask a few questions, and figure out together whether we can help and what that looks like for your family.