Meet The Team

Board of Directors

Julie Hutchison

Board Member

In addition to serving as President, Julie Hutchison currently oversees all aspects of the Chelsea Hutchison Foundation, from administration and event planning to networking and fulfilling requests for equipment and grants. Julie is driven by the desire to raise awareness of SUDEP for other families for whom that awareness may save a loved one’s life. Her strong work ethic and excellence in client service, honed by a successful career in real estate, contribute to Julie’s ability to lead a thriving organization.

Douglas Hutchison

Vice President

Doug Hutchison brings a collaborative and problem-solving approach to the Chelsea Hutchison Foundation, and he values his ability to communicate vital information to those affected by epilepsy and to the greater community. Doug’s background in sales and client satisfaction allows him to work easily with the people he encounters and help spread the Foundation’s message. Inspired by his daughter, who never let her epilepsy keep her from achieving what she wanted, Doug encourages others to do the same and is an invaluable contributor to the success of the Chelsea Hutchison Foundation.

Ashlee Baldwin

Secretary

Ashlee Baldwin, Chelsea’s big sister, brings her organizational and administrative skills to help the Chelsea Hutchison Foundation stay focused and effective in its mission to serve. In addition to taking and maintaining official minutes, Ashlee helps the Foundation spread the message of comfort and hope through email, blogging and social media. The combination of over ten years of experience in administration and transaction coordination, her passion for serving families living with epilepsy, and her dedication to bringing comfort to those families make Ashlee an invaluable part of this organization.

Brady Hutchison

Treasurer

With a background in finance and management, Brady Hutchison brings invaluable counsel and an eye for business to the Chelsea Hutchison Foundation. His strong work ethic and motivation to help those in need make him an integral part of the organization. In addition to his duties as treasurer, Brady participates in annual events, and helps to ensure that the Foundation continues to run smoothly. As Chelsea’s brother, Brady’s desire to honor his sister’s memory, as well as his admiration for families who struggle with epilepsy, inspire him to give his all.

Advisory Board

Ann Speer
Advisor

Ann Speer: Advisor

Ann has more than 20 years of financial experience working with both corporate and non-profit organizations. She has a passion for helping people, especially people with epilepsy.

Ann’s son, Brandon, was diagnosed at 13 years of age with epilepsy shortly after moving to Denver from Los Angeles. Over the years, in various board positions, Ann has enjoyed being a part of a team that makes a difference. She lives in Highlands Ranch, CO with her husband, Todd, and her Rock Canyon HIgh School senior, Michael. Brandon is in his Junior year at CU – Boulder.

Howard Moskowitz
Advisor

Howard Moskowitz: Advisor

I have always believed by helping others, you help yourself. I come from a very large family – my Mother and Father were each one of 9 children. My Mother’s side of the family was very close and as a child, my brother and sisters and I spent summers with our Aunts, Uncles, and cousins – each family in one room cabins on a piece of land my grandmother owned in upstate New York. I loved those summers and didn’t know what we didn’t have – we were together and that was everything to me. My family was not wealthy – our holidays were simple but again, always spent together. At a very young age, I learned the importance of family.

As my family grew older and my Aunts and Uncles began to become successful in business (but still not wealthy), I watched as many of them donated their time and what money they could to organizations that were important to them. Success can be measured in many different ways. Financial security is probably how most people define success, but I knew early in life, I needed more than financial success to be fulfilled.

I graduated from Parsons School of Design and began my professional career in NYC as a Vice President of Real Estate for American Savings Bank. That position gave me the confidence, training and foundation I needed to start my own national construction business which I did in Colorado in 1993. I have worked hard and instilled my own personal values in the company and fortunately that has paid off and my company is well-respected in the industry. It is a financially stable company surviving the many slow times over the last 20 years in the construction industry which I attribute to maintaining a high level of ethics and integrity in a business that isn’t always known for it. I am very proud of that accomplishment. The success of my business has allowed my family to enjoy many things including a beautiful home, travel all over the world, the opportunity to vacation with both immediate and extended family and spoiling our new grandson.

In 2010, our life changed forever, when my wife and I lost our son, Michael. It is a call that a parent never wants and it changes you forever. To say I shut down for a while would be an understatement. I could not participate in life even though I owned a business and went through the motions of “running” it, I was not there mentally. As the fog of the death of my son began to lift, I became aware of the depth of my sadness and disconnect from the life going on around me. My son was a kind, caring, gentle and supportive person who was a great friend to anyone who needed one. When I thought about him, I realized I needed to get back to being me – it was what he would want me to do. The first couple of steps were hard, but those steps are what pumped life back into me.

My son and I half joked we would someday run a marathon together so the same year he passed, I ran the NYC Marathon as a member of Team in Training who raised funds for the Leukemia and Lymphoma Society. Michael ran every step with me.

My early roots that taught me the importance of family and being charitable. I have donated time and money to organizations and foundations over the years. Being able to do that is truly a gift – a gift that fulfills me. In the past few years, a foundation that has become near and dear to me is the Chelsea Hutchison Foundation created to honor a beautiful young girl lost to SUDEP, something very few people know about. My wife and I know the Hutchison family and knew Chelsea. Our son knew Chelsea. The work the Foundation does is not only important, but educational and informative and I believe it changes and even saves lives. I cannot find the words to express what it means to me to be asked to be a member of this Board, except I do know that working/helping with the Foundation, is helping me be the kind of man I want to be. I am committed in every way and know Chelsea and Michael are responsible for this partnership. Thank you for this honor.

Toni New
Advisor

Toni New: Advisor

Toni (Markow) New contributes to CHF by blending her years of experience in business administration with her life long passion for photography. Understanding the Hutchison’s passionate desire to bring awareness, comfort and community to those families living with Epilepsy, she has photographed Colorado’s STOMP, Gala’s and Canine for Comedy events, as well as EADDL (Epilepsy Awareness Day at Disneyland) with the hope that her pictures will capture the amazing essence, fortitude and strength of the people living with this heartless disease.

Toni New
Advisor

Teresa Dickson: Advisor

Theresa Dickson is our newest Advisory Board Member. Theresa is the Sold Proprietor of Accounting Services Company in Aurora, CO. She has been an Accountant for over 35 years with an emphasis in Non Profits and Small Businesses. With thirty-five years of experience in multiple accounting roles, including Controller and Executive Accountant, CHF benefits from the in depth, comprehensive and individualized approach to Theresa’s bookkeeping and tax requirements.

Ann’s son, Brandon, was diagnosed at 13 years of age with epilepsy shortly after moving to Denver from Los Angeles. Over the years, in various board positions, Ann has enjoyed being a part of a team that makes a difference. She lives in Highlands Ranch, CO with her husband, Todd, and her Rock Canyon HIgh School senior, Michael. Brandon is in his Junior year at CU – Boulder.

Advisory Board

Gina Restivo
Ambassador

Gina Restivo: Ambassador

I believe I can’t pick and choose what inspires me. I also believe when inspiration strikes, it means there’s a mountain that needs some moving, and that I can help with that! I learned about Chelsea and the Chelsea Hutchison Foundation through Facebook. I was devastated to learn of another precious life taken by SUDEP. Almost immediately, and for reasons I don’t claim or pretend to understand, I could feel Chelsea in my world. Her goofy spirit is with me every day! Hard to ignore a gift like that. Julie Hutchison and I became good friends. I’m certain Chelsea had a plan for us.

I have no words to convey my feelings about a parent who loses a child and then makes the decision to work on a daily basis to protect others from a loss like theirs. I don’t believe in their position I would be capable of that effort. I know I wouldn’t be. I got to know this family and spent time at two of their events in Colorado. They truly are amazing. Their effort is powerful and grass root in the truest sense. It’s hard work every, single day. The world is not taking epilepsy seriously yet and so many who have it don’t even know that a seizure can take a life

I am bringing this foundation and their mission to as many people as possible in the Chicago area. My daughter Olivia (14) and my son Sam (11) are a big part of my effort! We’ve had a lot of family fun coordinating STOMP the last three years! The three of us are working with Julie and Doug to help keep people with epilepsy safe and make life (and breathing) a little easier. Seizure detection saves lives. Every time the CHF supplies grants for dogs that do that or monitors that alert caregivers, they are potentially saving a life! I wish someone had done what they are doing and that Chelsea was still here. I wish that every day.

I am so proud to be a small part of this effort!

Chandelle Owens
Ambassador

Chandelle Owens: Ambassador

I have three children, two boys and a girl. My sons are 9 and 11, my daughter is 4. I have worked in licensed child care for 25 years. I currently have a large family in home child care. Working with children is one of my passions.

December 25, 2013 my older son came into my room right before 7 in the morning. I am thinking he is coming to tell me Santa came and it is time to get up. Instead he says “something is wrong with River, come now”. I jump out of bed, run into the room and River is having a grand mal seizure! River had a seizure about a year and a half prior to that in his sleep early in the morning ( I just happened to walk by his room and caught it, actually I was not sure if he was having a nightmare or seizure). After the first one doctors said some kids just have one and they did nothing else. So Christmas morning 2013 was the second that we happened to catch. My mind went crazy, how many did I miss? I did not sleep for a month because I wanted to know if he had antoher one. A friend told me about the Emfit and when I looked into it I found out that insurance does not cover it, but the Chelsea Hutchison Foundation would help me get one. That is how I became part of CHF.

Becoming part of CHF has been such a blessing. I love being able to network with others that know what you are going through, why you are so worried. I also love helping CHF get the word out about Epilepsy Awareness and SUDEP. I have been to doctors that don’t think monitors are necessary and who don’t tell you about SUDEP.

I did my first fundraiser for CHF in September 2014. After that raising Epilepsy Awareness became a passion for me and so did raising money for CHF because they put my passion to work helping other families. September 2015 I did the first annual STOMP California and it was AMAZING. I also got to meet Julie Hutchison in person and wow that was better than meeting a celebrity to me (actually to me she is a celebrity). I live in a very small community where we don’t have state of the art medical facilities (we actually travel 6 hours to my son’s Neurologist).

I love that I can spread the word and awareness here and help families get the monitors they need and let them know that there is even such a thing available. I have talked with other moms in the area that had no idea these things were available and also just needed some emotional support. I have been that mom that found out her child has epilepsy and the doctors don’t tell you much and you just want to talk to someone that understands what you are feeling.

I am very grateful that I get to be part of Julie’s team, she is an amazing woman!

Denise Marsh
Ambassador

Denise Marsh: Ambassador

My name is Denise Marsh. I married my first love 26 years ago and we have six children. Our two youngest sons Brynnon (16) and Brett (11) both have refractory epilepsy. I am passionate about helping other parents who are on the same journey and believe that education is the key to unlock greater understanding.

Chelsea Hutchison Foundation has remained a constant support system in our journey providing education, friendship, understanding and a great sense of community. CHF also blessed our family greatly by granting them SAMi monitors that provide the gift of peaceful sleep!

Steven Shafran
Ambassador

Gina Restivo: Ambassador

I believe I can’t pick and choose what inspires me. I also believe when inspiration strikes, it means there’s a mountain that needs some moving, and that I can help with that! I learned about Chelsea and the Chelsea Hutchison Foundation through Facebook. I was devastated to learn of another precious life taken by SUDEP. Almost immediately, and for reasons I don’t claim or pretend to understand, I could feel Chelsea in my world. Her goofy spirit is with me every day! Hard to ignore a gift like that. Julie Hutchison and I became good friends. I’m certain Chelsea had a plan for us.

I have no words to convey my feelings about a parent who loses a child and then makes the decision to work on a daily basis to protect others from a loss like theirs. I don’t believe in their position I would be capable of that effort. I know I wouldn’t be. I got to know this family and spent time at two of their events in Colorado. They truly are amazing. Their effort is powerful and grass root in the truest sense. It’s hard work every, single day. The world is not taking epilepsy seriously yet and so many who have it don’t even know that a seizure can take a life

I am bringing this foundation and their mission to as many people as possible in the Chicago area. My daughter Olivia (14) and my son Sam (11) are a big part of my effort! We’ve had a lot of family fun coordinating STOMP the last three years! The three of us are working with Julie and Doug to help keep people with epilepsy safe and make life (and breathing) a little easier. Seizure detection saves lives. Every time the CHF supplies grants for dogs that do that or monitors that alert caregivers, they are potentially saving a life! I wish someone had done what they are doing and that Chelsea was still here. I wish that every day.

I am so proud to be a small part of this effort!

Stacey Biggs
Ambassador

Stacey Biggs: Ambassador

My name is Stacey Biggs. I graduated from Metropolitan State College of Denver in 2003 with a Bachelor’s of Science in Accounting. I married my husband a few months later in September 2003. I had big plans for us but things changed quickly when we were blessed with beautiful, healthy twins June 2005. My daughter’s name is Joey and my son’s name is Tyler. After they finally came into this world, I realized my plans were no longer what I wanted. I no longer wanted to go back to work, I wanted to stay home and raise our children. We were able to cut back on things and do a lot of budgeting, so I was able to stay at home with them. May 2007 we purchased Colorado Heights Camping Resort in Monument, CO. I began working from home, which is no easy task with two young toddlers in tow.

Halloween 2007, our lives changed forever again. Tyler had his first tonic clonic seizure. Things progressed for the worse over the next few years. We saw our healthy boy disappear to the seizures in front of our eyes. His official diagnosis is Doose Syndrome, a rare, catastrophic form of epilepsy that is intractable and medication resistant. After failing many meds (17 to be exact), the keto diet and the VNS, we were at a loss.

2011 our life changed forever again. We saw an ad for an Epilepsy walk in Clement Park for the Chelsea Hutchison Foundation. Didn’t know anything about it but we were all about supporting any and all epilepsy awareness. We went to the walk and learned so much. The fact that you can die from a seizure even though the doctors kept telling me no. And, about seizure response dogs. Didn’t even know there was such thing until then. My husband and I grabbed some info for future use.

February 2012 the Hutchison’s touched my family yet again. I was out of town at a funeral and my husband was at home with Tyler and our daughter. Tyler was super sick at that time. Richard had seen a news story that was covering the Hutchison Family and it made Richard bring Tyler to our bed. If he hadn’t seen that story, Tyler would not be with us today. That night, my husband had to rush Tyler to the ER as he was barely breathing.

I believe it was April or so we decided to fundraise and start our process getting a service dog for Tyler. The Chelsea Hutchison was kind enough to give us a grant to cover some of the costs. Penny, our beautiful goldendoodle, has now been a part of our family for almost 4 years. She is a huge blessing in so many ways for us. She does alert us when Tyler is going to have a really bad day.

It was my ultimate goal to raise enough to pay the foundation back. I was able to, plus some. Since then, I have wanted to pay it forward. What not better than with a foundation that is all about raising awareness for epilepsy and helping families who deal with epilepsy on a daily basis. Since then I have volunteered at numerous events and setup fundraisers. I am honored to be working with the Hutchison family and even more honored to be an ambassador of the organization.

Shelly Pulliam
Ambassador

Shelly Pulliam: Ambassador

My name is Shelly Pulliam. Our story started July 3rd of 2013. My oldest daughter Halle, 8 years old at the time, woke me up in the early hours of that morning. I found her in bed having a tonic-clonic seizure. It was the scariest, most horrifying experience of my life. I crawled in bed with her, yelling for my husband to call 911. Blessed with living in a small town, the rescue unit came within minutes.

After tests in the ER that morning, a trip to Children’s Hospital in Omaha that week for an EEG, Halle was diagnosed with Benign Rolondic Pediatric Epilepsy. The first few months were very hard for all of us. Halle was scared and confused. Her dad and I would take shifts sleeping, so one of us would be awake to hear her. Purple day that March, I went to her school and talked to her class. She stood up with me at the end and finally told her peers she had Epilepsy, and she was no different that she was before, that she needed her friends to not be afraid if and when she seized. I have never in my life been so proud of her! I posted on Facebook that night (sporting our Purple Day T-shirts) and later received a blessed phone call from my husband’s amazing cousin, Terri Davis. She happened to be an advocate and part of the Colorado Epilepsy Foundation. She gave me the name and info to contact The Chelsea Hutchison Foundation. Halle was a SAMialert grant recipient a few weeks later. That amazing device has forever changed our lives! We also found the support, education and understanding within the community of the foundation that we needed!

After trying a few different meds to find the right one, and many seizures later, we are so blessed and fortunate that Halle has been 19 months seizure free!

Throughout our journey we have realized we needed to educate not only ourselves, but our community, family and friends about Epilepsy and SUDEP. We hoped by educating people we could help eliminate some of the ‘fear of the unknown’ associated with seizures and Epilepsy. Following the foundations Facebook page we learned about STOMP! After attending our first walk with our family, we hosted an unofficial walk this year, and am thrilled to be hosting an official walk in ’16!! I have also been to Halle’s school educating the student body, teachers and staff. I am so excited to officially become an Ambassador for the Chelsea Hutchison Foundation and have the opportunity to continue to pay it forward, and to give to others the comfort and support we have been blessed to receive.

My name is Steven Shafran and I am an “Ambassador” for the Chelsea Hutchison Foundation.

Approximately sixteen years ago, I met Doug and Julie Hutchison and their three children while living in Highlands Ranch, Colorado.

In 1995, I moved to Winchester, Virginia and loss contact with the family until four years ago when my wife rediscovered them via a computer search.

At that time, we learned about the passing of Chelsea as the result of Epilepsy SUDEP. We also learned about the formation of the Chelsea Hutchison Foundation and its mission to provide help to individuals who have epilepsy. Funds raised by the Foundation provide grants for trained seizure-response dogs and seizure movement monitors for those in needs. Upon learning about the Foundation, I contacted Julie and offered to become an event coordinator for the CHF in Winchester, VA.

During the last four years, I have coordinated four annual 5K walks, hosted numerous fundraisers including a Night at the Movies, a Carnival Cruise, TastefullySimple Food Online Party, National Month of November Awareness for Epilepsy party at the George Washington Hotel and Springtime Nursery Sale.

In addition, I received two Proclamations for Epilepsy SUDEP Awareness from the Mayor of Winchester, appeared on numerous local television and radio shows, in articles of two our local newspapers and represented CHF at different service organizations to raise awareness about CHF and Epilepsy SUDEP Awareness.

In 2016, I look forward to continuing serving CHF as an “Ambassador” for Winchester and the surrounding area.

Sam Dudley
Ambassador

Sam Dudley: Ambassador

Hey everyone! My name is Sam Dudley! I have known the love of my life (Rod) since I was 14 and shortly after I graduated High School we were married and started a family! We have three beautiful children Cydni, Wyatt and Jaxon,

My story started when I was young, I had my first seizure when I was 3. I remember constantly being at the Doctor’s office and drawing blood weekly to check levels. Luckily I out grew seizures by the time I was 12. Wyatt was born healthy, on time and was the perfect baby!! He was always super happy and had a smile on his face! Three days after receiving his two year old shots he had his first seizure! It was the scariest thing I had ever seen! He had turned blue and was foaming at the mouth and it seemed forever for the paramedics to show up! They took us to St. Lukes and admitted him over night. They said it was from him having a fever but I knew he never had a fever. So they sent us home and said if it happened again to call their Neurologist. He had several more before they finally got us in with the Doctor. This specific Neuro ended up telling us he didn’t feel comfortable with him and sent us to Children’s Hospital! Wyatt went from one type of seizure to seven types within a year. After being admitted for a EEG he was diagnosed with Doose Syndrome. He had tried a total of 23 different meds, the Keto diet and now they were trying to talk us into the VNS. For some reason I couldn’t imagine them putting a magnet in him and then if it didn’t work he would have that inside of him all of his life. At this point I was researching like crazy trying to find something to help him! He was in status all the time and the Doctors told us if we didn’t do something soon we would loose him to a seizure. I had found another family with a son with the exact same time as diagnosis, the same doctors and the exact same seizures. I had contacted the mom to see what they were doing with her son. She told me that she had taken up upon her self to look into certain procedures that helped in the 70’s and that she was meeting with a surgical team to discuss this possibility of doing this procedure on her son.

After knowing that information I made a appointment with our Neuro and discussed the same surgery!! After many conferences with the surgical team they approved us to have surgery. Nov 19 2013 Wyatt was the second little boy to have the Corpus Callosotomy done at Childrens!! He had a little bit of weakness on his left side but with aggressive therapies he had regained almost all of it back!! Wyatt has been seizure free for three years now and is doing amazing! He actually competed in his second wrestling match this year!! He still has some issues from seizing that many times but for the most part we have our little boy back!! To think we went from hundreds of seizures a day and knowing if we didn’t do something we were going to loose him to watching him get second at his wrestling tournament!! A nurse we had at Children’s once told me ” If you don’t stand up and advocate for him nobody else will” and she was exactly right!!

I reached out to CHF right after he was diagnosed with epilepsy to see if she could help. She did so much more than help! We received a grant to get Wyatt’s seizure dog Gus and a seizure monitor. I cant count how many times Gus alerted when Wyatt was seizing and saved his life! She even showed up the night of his brain surgery and brought him a Chelsea bear! She is absolutely amazing and I knew that I wanted to be part of this!!