• Changing lives one seizure response dog at a time

  • International Epilepsy Awareness – Day Three

    Brennan

    This is my son Brennan, he’s 18 months old. He was diagnosed with epilepsy at 4 months old but has had seizures from birth. He deals with at least 7 different types of seizures. His epilepsy is cause by lissencephaly. We’ve gone through hell and back trying to find the right medications and combinations of treatments to stop them. So far all but three types of his seizures have been controlled. He still has them daily. We tried the ketogenic diet, it ended up starving him. We went through a huge legal battle with the hospital and social services because they said it was my fault it wasn’t working. I have him back now thank God and all of that is over with. We spend at least one day a week traveling 4+ hours to different specialists at our children’s hospital. We are currently fighting to get him oxygen at home for apnea and seizures, to figure out why stomach, colon, bladder, and kidneys just aren’t functioning right, and have as few seizures as possible. He also receives physical and occupational therapy every week. He’s very very delayed he cannot hold his head up or purposefully use his hands. Partially due to cortical blindness. I have a wonderful family, we live with my parents since I’m 21, a single mom and I can’t work. I can talk to them about anything. I want people to know that Brennan’s condition is serious, I can’t tell you how many times I’ve been told that he will grow out of it or I need to stop babying him. Brennan can’t walk, he never will. I would also like people to know that there is way more to epilepsy then tonic clonic seizures and that his absence seizures are just as bad as his infantile spasms. I believe the one thing that would make the biggest difference in our lives is awareness. I would love to see as many people wearing purple in November as I see wearing pink in October.